Kay was supposed to have one more PT and Speech session left next week before starting kindergarten. However, her new school sent an email letting us know they are doing a practice run for kindergarten next week for two hours, and one of those days happens to fall during Kay’s therapy session. As much as…
Today we had Kay’s endocrinology appointment, and it was a really important one as we prepare for her first full year of school. Since she will be starting kindergarten soon, we had a lot to discuss and update in her Diabetes Management Plan. One of the biggest things I wanted to talk about was how…
When we started the conversation about medication for Kay’s ADHD symptoms, I had a lot of mixed emotions. On one hand, I was hopeful that maybe this could help her show more of her true potential, especially with kindergarten right around the corner. On the other hand, I knew this was a big decision and…
Potty training is something we’ve been working on for quite some time, but lately we’ve decided it’s time to really give it our all. With kindergarten quickly approaching, we’re putting a lot more focus into helping Kay build this important life skill. Some days feel incredibly encouraging, while others remind me just how much patience…
A few days ago, Kay had an important appointment with her audiologist and ENT, and we left with some pretty big news. After discussing her hearing needs, her current BAHA headband, and the options available to her, we officially decided to move forward with the Osia system, a bone conduction hearing implant. Hearing loss is…
Kay was chosen for the 2026 National Down Syndrome Society Times Square Video Presentation! For the past several years, I’ve submitted Kay’s photo, hoping that maybe this would be the year she would be one of the 500 individuals with Down syndrome selected to appear on the giant screens in the heart of Times Square.…
Today Kay received something that made both of us smile. A little while back, we entered an Omnipod giveaway and found out that Kay had won her very own copy of the Dyasonic: Sound Strength comic. It finally arrived, and seeing how excited she was to hold it in her hands made the moment even…
We’ve officially reached another waiting game. At Kay’s most recent appointment, we spent more time going over her ADHD symptoms and discussing everything we’ve observed over the past several months. This wasn’t just based on my observations at home. We also provided the completed questionnaires, including the survey I filled out, feedback from Kay’s ABA…
If you’ve been following our journey for a while, you know that managing Type 1 diabetes often feels like putting together a puzzle. Most of us expect to think about carbohydrates, insulin, activity levels, illness, growth spurts, and hormones. Those are the things we’re taught can affect blood sugar. But one thing that isn’t talked…
This year’s Fourth of July was one for the books. Thanks to Tyler’s dad, we were able to spend the evening in a beautiful suite at one of the casinos he manages, and it ended up being the perfect place to celebrate. The suite offered incredible views of the fireworks all across the city, so…
