Our trip to Reno was exactly what all of us needed. The biggest highlight for Kay was getting to spend time with Tyler’s family, especially her favorite person, Hannah. Hannah, who also has Down syndrome, shares such a special bond with Kay, and watching their relationship continue to grow is something I’ll never get tired…
A few weeks ago, I shared that we had started looking into the possibility that Kay may have ADHD. Since then, we’ve taken the next step in the process. At our doctor’s request, I completed a Vanderbilt assessment, and so did both Kay’s RBT and BCBA at her ABA center. Having people who see Kay…
Sometimes the sweetest moments come completely out of nowhere. We received a message from Omnipod saying we won their Omnipod x Marvel giveaway and will be receiving our very own copy of the Dyasonic comic. I honestly entered not expecting anything at all, so getting that message was such a fun surprise. We never win…
We are currently in the process of navigating medication options for Kay, and like most things in her care, it has not been a simple or straightforward path. Right now, we are still in the early stages of figuring out what will work best for her, not only in terms of effectiveness but also in…
Father’s Day this year was simple, calm, and exactly what we needed. We stayed home, spent time together, and ended the day swimming, which is always one of Kay’s favorite things to do. It wasn’t anything extravagant, but it felt meaningful in all the ways that matter most. I feel incredibly lucky when I think…
This past week we had another appointment with the doctor who is continuing Kay’s ongoing evaluations to better understand whether ADHD may also be part of her overall profile. During this visit, the doctor went through additional questions with me, really taking the time to dig deeper into Kay’s day-to-day behaviors, patterns, and challenges. I…
Today at GiGi’s Playhouse felt extra special in a way that is hard to fully put into words. We got to spend time with part of the Athletics team, and having them there with us brought such an incredible energy into the space. It was more than just a visit. It felt like community, connection,…
Lately we have been really focused on helping Kay get more comfortable wearing her BAHA again. For anyone who may not be familiar, a BAHA is a bone anchored hearing aid. It helps transmit sound through bone conduction instead of the traditional way sound travels through the ear. For Kay, this little device can make…
Two years ago, our world changed. What started as a trip to the pediatrician quickly turned into a diagnosis that would forever become part of our family’s story. Hearing the words “Type 1 Diabetes” attached to your child is something that is impossible to prepare for. In an instant, our lives became filled with finger…
One of the topics we’ve been exploring lately is whether Kay may also have ADHD. Recently, we had our first appointment with a PMHNP-BC, which stands for Psychiatric Mental Health Nurse Practitioner. In simple terms, he is a medical provider who specializes in mental health and behavioral conditions, including things like ADHD, autism, anxiety, and…
