Kay March Blog 10

There’s just something about the start of t-ball season that feels like a fresh little burst of joy, and this weekend did not disappoint. Kay had her very first game of the spring season, bright and early at 8am. It was already warm (because… Las Vegas), but thankfully not too hot yet. The heat has…

Kay March Blog 9

We had Kay’s ENT appointment recently, and for the first time in a while, it actually felt… productive. If you’ve been following our journey, you know she sees her ENT every six months, and some visits in the past have felt a bit routine—especially since Kay has been seeing an adult ENT for the last…

Kay March Blog 8

This past Saturday, we had the best time celebrating World Down Syndrome Day at GiGi’s Playhouse with a fun party co-hosted by Down Syndrome Connections Nevada—two truly incredible organizations that bring so much love and support to families like ours. World Down Syndrome Day is recognized on March 21st (3/21), and that date is so…

Kay March Blog 7

Advocating for your child doesn’t always look like big, loud moments. Sometimes, it looks like sitting on hold… again. Sending the same paperwork… again. Explaining your child’s needs to yet another person… again. And doing it all with patience you didn’t know you had. For the past month, I’ve been deep in what feels like…

Kay March Blog 6

This past weekend we attended Kay’s last soccer game of the season. It was a warm day, but thankfully not too unbearable, making it perfect for cheering her on. Next season has already been announced to start a bit earlier and run a little longer in hopes of avoiding the worst of the heat—which is…

Kay March Blog 5

Taking Kay to the dentist is usually pretty routine. Teeth cleaning, a quick check, maybe a sticker at the end, and we’re on our way. This visit started out pretty much the same. Kay did great with her cleaning and even tolerated getting X-rays done (with the help of plenty of stickers), which honestly is…

Kay March Blog 4

It might seem a little extreme to some that my 5-year-old has a cellphone, especially when she’s only in Pre-K. I get it. When people picture a child that young with a phone, they imagine games, videos, or something to keep them entertained. But for Kay, it’s not really a cellphone at all. It’s a…

Kay March Blog 3

Over the weekend we made a visit to one of our favorite hidden gems in Las Vegas, the McKee Ranch. We’ve visited the ranch before, but this trip felt a little more meaningful. We wanted to stop by and show our support because the ranch is currently facing pressure from local animal control that could…

Kay March Blog 2

Youth sports at this age are usually a little… chaotic. And honestly, that’s to be expected. At five years old, soccer has looked a lot less like an organized game and a lot more like practicing drills, chasing a ball around the field, and occasionally kicking it into the goal. Sometimes there’s a short makeshift…

Kay March Blog 1

I did something small that felt incredibly big: I put on a CGM, just like Kay. She stood right next to me, counted to three in her sweet little voice, and I clicked it on. Without missing a beat, she looked at me and said, “Good job, mommy!” And just like that, my heart completely…