Recently, Kay had to get blood work done, which is something we do on a yearly basis due to her having Down syndrome. Kids with Down syndrome can be more susceptible to certain health conditions, so routine lab work is really important. It helps us stay proactive—keeping an eye on things like thyroid function, vitamin…
We recently had another three month follow-up appointment with Kay’s endocrinologist, and like most of these visits, it came with a mix of emotions. Endocrinology appointments are never just “routine” for us. They’re a snapshot of everything we’ve been navigating behind the scenes—the highs, the lows (literally), the adjustments, the sleepless nights, the second-guessing, and…
We had a follow-up visit at the dentist for Kay recently, and this one felt like such a full-circle moment compared to last month. This appointment was a quick check-in after her cleaning, mainly to see how everything was progressing—especially since we were expecting some big changes with her teeth. Between possible adult molars coming…
The past week has been a lot. Kay recently came down with what we can only describe as a very random viral infection. It started off subtle, nothing too alarming at first, but then she developed a rash that definitely caught my attention and led us to a visit with her pediatrician. After examining her,…
Back in February, I started the process of trying to get insurance to cover pull-ups for Kay. What I didn’t realize at the time was just how long, frustrating, and exhausting that process would be. Denial after denial came in. Each one asked for more information than the last. Each one felt like a subtle…
Low blood sugars don’t just show up as a number on a screen—they affect everything. Recently, Kay dropped into the 60s, and it took 4 glucose gummies and an applesauce pouch before we finally started to see her blood sugar start to rise. In those moments, you go into “fix it” mode, you’re counting grams,…
Sunday gave us another one of those days that just felt so right from start to finish. The GiGi’s Playhouse Dash for Down syndrome was this past weekend, and somehow we lucked out again with beautiful weather. It was sunny, comfortable, and honestly perfect—aside from the wind doing its own thing and keeping us all…
There’s something about these Saturday mornings lately that just feels extra special, and this past t-ball game was no exception. This one had a superhero theme, and it honestly couldn’t have been more perfect. Kay seemed to really lean into the fun of it all. At one point, she had a little one-on-one moment with…
We’re only on our second T-ball game of the season, and already it’s shaping up to be such a fun and meaningful experience for Kay. If you know anything about the weather in Las Vegas, you know the heat has decided to show up way earlier than usual this year. I was a little nervous…
GiGi’s Playhouse hosted their 2nd annual Easter Egg Hunt at Chicken N Pickle, and this year felt like the right time to finally give it a try with Kay. In years past, I hesitated. I wasn’t sure if an event like this would be overwhelming for her or if she’d really enjoy it. Big events…
