Back in February, I started the process of trying to get insurance to cover pull-ups for Kay. What I didn’t realize at the time was just how long, frustrating, and exhausting that process would be. Denial after denial came in. Each one asked for more information than the last. Each one felt like a subtle…
Low blood sugars don’t just show up as a number on a screen—they affect everything. Recently, Kay dropped into the 60s, and it took 4 glucose gummies and an applesauce pouch before we finally started to see her blood sugar start to rise. In those moments, you go into “fix it” mode, you’re counting grams,…
Sunday gave us another one of those days that just felt so right from start to finish. The GiGi’s Playhouse Dash for Down syndrome was this past weekend, and somehow we lucked out again with beautiful weather. It was sunny, comfortable, and honestly perfect—aside from the wind doing its own thing and keeping us all…
There’s something about these Saturday mornings lately that just feels extra special, and this past t-ball game was no exception. This one had a superhero theme, and it honestly couldn’t have been more perfect. Kay seemed to really lean into the fun of it all. At one point, she had a little one-on-one moment with…
We’re only on our second T-ball game of the season, and already it’s shaping up to be such a fun and meaningful experience for Kay. If you know anything about the weather in Las Vegas, you know the heat has decided to show up way earlier than usual this year. I was a little nervous…
GiGi’s Playhouse hosted their 2nd annual Easter Egg Hunt at Chicken N Pickle, and this year felt like the right time to finally give it a try with Kay. In years past, I hesitated. I wasn’t sure if an event like this would be overwhelming for her or if she’d really enjoy it. Big events…
There’s just something about the start of t-ball season that feels like a fresh little burst of joy, and this weekend did not disappoint. Kay had her very first game of the spring season, bright and early at 8am. It was already warm (because… Las Vegas), but thankfully not too hot yet. The heat has…
We had Kay’s ENT appointment recently, and for the first time in a while, it actually felt… productive. If you’ve been following our journey, you know she sees her ENT every six months, and some visits in the past have felt a bit routine—especially since Kay has been seeing an adult ENT for the last…
This past Saturday, we had the best time celebrating World Down Syndrome Day at GiGi’s Playhouse with a fun party co-hosted by Down Syndrome Connections Nevada—two truly incredible organizations that bring so much love and support to families like ours. World Down Syndrome Day is recognized on March 21st (3/21), and that date is so…
Advocating for your child doesn’t always look like big, loud moments. Sometimes, it looks like sitting on hold… again. Sending the same paperwork… again. Explaining your child’s needs to yet another person… again. And doing it all with patience you didn’t know you had. For the past month, I’ve been deep in what feels like…
