Kay’s school kicked off the year with its first family engagement event! These events happen several times throughout the school year, and each one offers something new. This time, the local fire department paid a visit! Since the fire station is right next door to the school, a few firefighters stopped by with their fire…
Kay had her six-month checkup with the ENT, which is usually a quick but necessary visit. Since Kay has smaller ears, she’s more prone to ear infections, and too many could mean needing ear tubes. Thankfully, while she’s had a few infections, it’s not enough to require tubes yet—good news! During the appointment, the…
Kay and I had so much fun celebrating her friend Leo’s 4th birthday this weekend! The party was held at GiGi’s Playhouse, which is such a special place for our community. I love that we can gather with our friends and celebrate important moments at a place that means so much to us. The…
My mom and I had the joy of attending the 2nd annual GiGi’s Playhouse gala, themed “I Have a Voice.” A few months ago, I had the chance to write about what GiGi’s Playhouse means to our family and the positive impact it’s had on us. To my surprise, I was later invited to film…
This past weekend, my mom and I attended an incredible summit hosted by Breakthrough T1D, a global organization dedicated to research and advocacy for Type 1 diabetes. Back when Kay was first diagnosed and, in the hospital, I was given a backpack filled with helpful resources, children’s books about Type 1, and a sweet…
Kay recently had her six-month checkup with her audiologist! For those who don’t know, Kay was born with severe hearing loss in her right ear. To help with this, she wears a BAHA (bone-anchored hearing aid) that allows sound from her left ear to travel to her right. Technology has come so far, and in…
Kay’s little league T-Ball team recently hosted a special event that was beyond exciting. Two bands from Japan, LOBRAVE (an all-male group) and PIPPA (an all-female group), visited Las Vegas to film content for a possible music video! These groups are known for entertaining children and adults with special needs, and they regularly visit hospitals…
Our local GiGi’s Playhouse recently announced they were looking for community members to participate in a video that will be featured at this year’s gala. I thought it would be a fun experience for Kay and me, so we decided to join in! I’m so glad we did because while we were there, we…
I spent Kay’s first week of school in the nurse’s office, waiting for her to finish breakfast so I could administer her insulin. Before school started, I was informed that a nurse would only be available two days a week, meaning I would have to manage Kay’s care on the other two days, as she…
I recently switched Kay’s endocrinologist because I felt the care she was receiving wasn’t up to the standard she deserves. I understand that doctors can be busy, and sometimes our options are limited, but I refuse to settle for mediocre care when it comes to Kay’s health. If Kay doesn’t receive the proper treatment,…
