We are currently in the process of navigating medication options for Kay, and like most things in her care, it has not been a simple or straightforward path.
Right now, we are still in the early stages of figuring out what will work best for her, not only in terms of effectiveness but also in terms of form and how she is actually able to take it. One of the biggest challenges we’ve already run into is simply finding a version that she can safely and realistically take.
The first medication we picked up came in a pill form, which is not something Kay is able to do. After that, we started looking into other options, including chewable forms. However, I also have concerns about that route as well, since Kay has previously struggled with chalky textures, including glucose tabs, and I worry that a similar texture could make it difficult for her to tolerate or fully take the medication.
Because of that, we are now exploring whether a specialty pharmacy may be needed in order to create a liquid version or a more suitable formulation for her. We are still in the process of sorting all of that out, and nothing has been fully decided yet.
What I am learning through this process is that medication management is not just about choosing what is prescribed, but also about accessibility, sensory needs, and what a child is realistically able to accept and tolerate day to day. Especially for a child like Kay, who already has so many layers to her care, those practical details matter just as much as the medication itself.
At this point, we are still working through options, coordinating with providers, and figuring out what is even possible. There are still unanswered questions, and likely more adjustments ahead as we continue.
I will continue to update as we move forward and as we hopefully get closer to finding something that truly works for her in a way that is both effective and manageable for her specific needs.