I recently took the step to get screened through TrialNet, a program that offers free testing for people who have a family history of type 1 diabetes. Since Kay was diagnosed, I’ve been learning as much as I can about type 1—and when I found out I qualified for a free at-home test kit, I knew it was something I needed to do.
The test screens for autoantibodies that may indicate the early stages of type 1 diabetes—even years before symptoms appear. While a negative result doesn’t completely rule out ever developing T1D, it does suggest a lower risk—especially compared to someone with no family history. With several family members who’ve had type 1, it felt important to get more clarity on my own risk, not just for peace of mind, but so I can take care of myself while focusing on Kay.
If autoantibodies are detected, TrialNet can connect you with options that might help delay the onset of type 1, like current medications that are part of ongoing research. I know not everyone wants to know this kind of information; it can be anxiety-inducing to think about if or when something might happen. But for me, the knowledge feels empowering. If there’s something I can do to potentially delay T1D or prepare for it, I absolutely want to take that step.
I’ll be honest, collecting the blood sample wasn’t easy. I underestimated how much blood they’d need from a finger poke and struggled to get enough. But I sent in what I could. Thankfully, TrialNet’s customer service was amazing! They reassured me that if the sample wasn’t sufficient, they could send me to a local lab for a proper blood draw. Looking back, I probably should’ve done that from the beginning. Oops! But I’m grateful for how easy and supportive the process has been.
Now that my sample is in the mail, I’ll be waiting about 4–6 weeks for results (unless I end up needing to redo it). Either way, I’m glad I took this step.
TrialNet is an international research network funded by the NIH (NIDDK) and Breakthrough T1D, with more than 200 clinical sites around the world. Their mission is focused on the early detection, monitoring, and possible prevention of type 1 diabetes.
The screening test looks for up to five autoantibodies that signal the immune system is attacking insulin-producing cells in the pancreas—well before symptoms appear. If you’re a relative of someone with type 1, testing is completely free and available in-home, at clinics, or local labs.
If you have a family history of type 1 diabetes, I truly encourage you to consider doing the TrialNet screening. It’s free, it’s simple, and it gives you access to knowledge and resources that could make a real difference. This is one small way I’m choosing to prioritize my own health while continuing to support Kay—and I’m so thankful programs like this exist.