I spent Kay’s first week of school in the nurse’s office, waiting for her to finish breakfast so I could administer her insulin. Before school started, I was informed that a nurse would only be available two days a week, meaning I would have to manage Kay’s care on the other two days, as she attends school Monday through Thursday.
Thankfully, after I voiced my concerns about the lack of nursing coverage, another nurse was found to cover the days the original nurse wouldn’t be there.
Even with a nurse on hand during breakfast, I still find myself staying at the school, waiting for Kay. Part of this is because I’m understandably nervous about completely handing over her care, even for just 2 ½ hours. I love Kay’s school, and her teachers are wonderful—we’ve never had any issues, for which I’m incredibly grateful. However, managing diabetes means that specific calculations need to be made after each meal to determine how much insulin Kay should receive. With Kay still transitioning in and out of the honeymoon phase, I worry that the calculations (set by her previous endocrinologist) might suggest a higher dose of insulin than she currently needs, even if the calculations are correct.
We currently use insulin pens, and the lowest dose of insulin I can give Kay is 0.5 units. Even with that small amount, her blood sugar can drop quickly and significantly, which can be dangerous if not addressed immediately. That’s why I’ve been sticking around the nurse’s office—just to be there and ensure she gets the smallest possible dose, as she tends to go low while at school, especially with all the running and playing she does. If her blood sugar drops, a juice box is usually needed to bring it back up. Thankfully, with Kay’s continuous glucose monitor (CGM), I can track her levels in real-time and receive alerts for any changes. I’m also grateful that Kay’s school has consistently called me whenever this happens and informed me of the steps they’re taking.
Fortunately, Kay’s new endocrinologist updated the school orders and asked what would make me feel more comfortable. I’m much more at ease with the new plan for Kay’s care. But for now, I don’t mind spending my mornings at school, ensuring she’s well taken care of before heading off to class.