Kay and I have been published in a magazine!
At the end of March, I was contacted with an exciting opportunity—to be featured in an upcoming issue of a magazine called Stories of Perseverance, which would be released in May. I was asked to write about a time—or times—when I had to persevere, no matter the circumstances.
Here’s a portion of what I wrote:
“There are days when the weight of it all feels unbearable. The sleepless nights, the fear of something going wrong, and the constant need to stay on top of her health can be exhausting. However, in those moments, I find strength in Kay’s resilience. Despite everything she has been through, she continues to smile, laugh, and embrace life with an infectious joy. Her spirit reminds me every day that we are capable of more than we ever imagined.
Beyond the medical challenges, we’ve also encountered societal barriers. Raising a child with Down syndrome and Type 1 Diabetes means constantly advocating for inclusion, understanding, and the right to a full and vibrant life. I’ve learned to navigate the education system to ensure Kay receives the support she needs to thrive. Through it all, I’ve found my voice in the disability community—using our journey to raise awareness and push for acceptance.”
Being asked to share even a small part of our story—of Kay’s strength and the challenges we’ve faced—was a true honor. I’ve learned to say yes to opportunities, even when they feel intimidating, because taking that leap is often what leads to the most meaningful experiences.
Just a couple of weeks ago, I finally received physical copies of the magazine! Seeing it, holding it, and reading my words in print was such a surreal and emotional moment. I’m incredibly grateful for the life lessons that have brought us to this point.