It’s hard to believe that it has been a little over two years since I began writing these blogs for Kay’s World. My very first posts were written in November of 2023, and at the time, I had no idea what this space would grow into or how much it would come to mean to me.
What started as a way to process our days, our challenges, and our joys slowly became something bigger. Writing about Kay has allowed me to document her journey in a way that feels honest and intentional. It has given me a place to reflect, to advocate, to educate, and sometimes simply to breathe. These words have helped me make sense of seasons that felt overwhelming, uncertain, or heavy, while also preserving the moments of joy that deserve to be remembered.
Through these blogs, I’ve also been given opportunities I never could have imagined when I first began writing. One of the most meaningful has been traveling to Oregon each year to attend the DSP Summit, where I’ve had the chance to speak, share our story, and connect with so many of you in person. Being able to stand in front of hundreds of people, tell Kay’s story, and then meet you, talk with you, and say hello afterward has impacted me in more ways than I can fully explain. Those experiences have been incredibly life-changing and have reminded me why sharing our journey matters.
I am deeply grateful for the support this space has received over the past two years. To those who read quietly, who share posts, who reach out with messages of encouragement, or who tell me that a piece resonated with them — thank you. Your support reminds me that Kay’s story matters, that our experiences are not isolated, and that there is strength in sharing real life, even when it’s messy.
This blog has never been about perfection. It’s about honesty, growth, and connection. It’s about advocating for Kay, but also for so many other families walking similar paths. It’s about learning as we go, celebrating progress in all its forms, and holding space for the hard days without losing sight of the hope.
I don’t take it lightly that people choose to spend their time here, reading about our lives and trusting me with their attention. Being able to write for Kay’s World has been a gift, and I’m deeply thankful for the community that has formed around it.
As we continue forward, I remain committed to sharing our journey with the same openness and heart that brought me here in the first place. Thank you for being part of this space, for supporting Kay, and for walking alongside us through every chapter.